First of all, for any of my friends who are reading ‘Me Before You’ and have not finished, stop reading this blog post. Fair warning to avoid spoiling the ending for you! Yesterday, my husband came home from work, and I was able to be up, showered, medicated, and ready for our day together. For the first time since surgery, the pain was not taking my breath away, or making it very difficult to move. You know what that meant?! Date!!! We ran a bunch of errands we were needing to run I know, what kind of ‘date’ is that? Well, for me, for us, any time we have time together no matter what we are doing it’s so much fun. I’m even dorky enough to sing a lame song that goes a little something like ‘ running errands with my baaaayyyyybbbbbbyyyyyyy’. Why? Because it really is all of the little things in life. Since being diagnosed that is what my life has quickly become about. All of the little things. We stopped and ate lunch together before heading home, and by the time we got home, I was in a lot of pain from just simply running errands. I took some medication and laid on the couch for a 2 hour nap. Upon waking up I was SO excited for the date night we had planned together. Dinner and a movie. So simple, but I was nervous. Nervous that I wouldn’t make it through the night, that I would ruin our night together if I was unable to make it all the way through without having to go home and lay down and take more medication. But, guess what?! I did it! Made it through our date night!! Painful, and hard, but the best night with my husband and best friend. After our sushi dinner, we went to see “Me Before You’. I had just finished the book, and my husband promised to take me to the movie even though ‘chick flicks’ are very much not his thing. For those of you who don’t read, and haven’t seen the movie, the character in the movie was paralyzed in an accident, and it is a story of how his life has changed since. A specific line in the movie hit my heart and soul hard, and ended up created a long night of openness, and tears between my husband and I. The main character said “I loved my life, I really loved my life before this. This is not the life I want to live”. In the end of the story, he ends up opting to end his life as to him, the life he now had was not anything he had ever wanted. It was hard, and painful, and not anything he wanted. I wiped my tears and we began our walk to the car. It was cold and windy, and I had a dress on, which by the way, was so hard and painful to get on. I wanted to wear a dress, and get dressed up for date night with my husband. This was a pretty painful experience. Trying to pull on a dress over my healing mastectomy site brought tears to my eyes. But, I got into it! I was also able to cover my dead nails with nail polish and feel a little prettier. (Chemo has killed my nails, and they are not the ‘pretty’ nails I took for granted prior to all of this. I attached a picture to this to see what my dead nails look like ) Back to the point, walking back to the car in the cold, I was shivering which was VERY painful. It makes sense. When you shiver, your muscles contract and oh my goodness did that kill me. By the time we got to the car, I was able to warm up and catch my breath as the pain started to subside. I was looking out the window when I began to fall apart. I started crying thinking about the book/movie and how the character felt. Although very different circumstances, I have felt sad and angry as he did. Each day I wake up with a full heart, and I am grateful for the day. As you have all heard me say a thousand times, I know this is my plan, my journey, and all of the wonderful things that come out of it. I believe in mind over matter, and being grateful for each little blessing. But, it is just as important to feel everything that you are feeling. To melt down and cry, be sad, and angry. The movie, and the pain I was feeling from a simple date night brought on a whirlwind of emotions and opened the door for many tears, honesty, vulnerability, and deep conversation with my husband. The perfect ending to our date night. I tried to put so many feelings into coherent words to help him understand what I feel but don’t really talk about. Why when I finally find true love, my very best friend, my soul mate, my puzzle piece does this happen to me? I am in so much physical, emotional, and mental pain. It’s not easy. None of it. I am healing each day, and so thankful. I’ve attached pictures below of post op day 1, and 2 weeks post op. I’m healing! I got clearance to start expanding next Friday, and I will continue to keep everyone updated with the progress. I think it’s important to share photos of this process, as there are many people who genuinely have no idea what this entails. I received text messages the day of surgery from friends congratulating me on my “new perky boobs”, and telling me ‘at least you wont have to wear a bra anymore’. I cried because that is absolutely not what this is all about. It takes a long painful road to get to that point. I knew then, that I needed to be brave and vulnerable and share photos of this process. I get stronger each day with my confidence in my new body, but last night when I fell apart in my husbands arms I cried. I cried and grieved losing my body. Losing my breasts. Losing my 29 year old body. It hurts, it’s not easy, and it’s not fair. We go places, and people stare at my port, or other women look me up and down and make me feel small. If only they knew the fight I was going through to just be here. I wish peoples hearts would be more true, open, accepting, and loving. We’ve all heard a million people talk about not judging another person until you’ve walked in their shoes, and this is the perfect example. For any stranger who does not know me, they don’t know my pain or what my day to day life is like. How could they? I have my make up, eye brows drawn on, my wig, and my clothes covering my scars. I can blend into the crowd with everyone else. I find myself observing people in a different way. I can’t help but look at people and wonder what their story is. What struggles they’ve had, what hardships they’ve overcome. I’ve become a much kinder, genuine, accepting woman already through this. I continued to cry and tell my husband that I would give anything to have the “problems” other people have. To have “normal” 29 year old woman problems. Anything. The truth is, as I told my husband last night, I am happy, and blesses, and thankful but I am heart broken and in so much pain everyday. It’s the hardest thing to explain, and I think I did the best I could through the gallons of tears I cried last night to help my husband understand how you can feel so blessed and thankful, but be in such an incredible amount of pain at the same time. It felt good to feel last night. To allow my husband vulnerably into my soul. We have a busy week ahead, I have a Muga scan tomorrow, chemo again Tuesday, and we start expansion Friday. Excited to keep moving forward and crossing things off of our list.





Going into the 5th round of chemo, we pre planned 2 separate IV fluid appointments in hopes that maybe we could prevent me from being so miserable. My oncologist also wanted to keep an eye on the rash that I keep developing about 5 days after chemo. Right on schedule, the evening of the 5th day following chemo, I kept waking up with my arms feeling like a had a very bad sunburn, and the next morning, the rash was covering my right arm. My appointment for fluids on Monday also consisted of my oncologist being very confused by the rash, and giving me IV steroids as well as 4 days of oral steroids. Not only did this not help, my arms kept getting worse, much worse than the previous round. Off to the dermatologist I went. He was unsure what exactly the rash was, but thought he would give me 2 weeks of a higher dose of steroids. For those of you who are not aware, steroids are not enjoyable. You’re cranky, hungry, puffy, and its impossible to sleep. But, if it’s going to make me better, its worth it. My rash is getting WORSE. The best way I can explain the pain is for you to imagine what it would feel like to have someone hold a torch to your arms. As miserable as it is, I keep going through each day thinking as positive as I can. If the chemo is destroying my arms the way it is, imagine what it is doing to the cancer in my body! Now, it’s time for my appointment with my oncologist prior to my next chemo. This time our appointment is a week before my 6th chemo instead of the same day. We’re sitting in the exam room like usual, Dr. Mayer walks in laughing (as he has done time and time again, because what else can we do other than laugh at all of the things that are constantly thrown my way?) he sits down and tells me I need to go to the dermatologist today, and get a skin biopsy. He is unsure what is causing my rash, and we need to be sure it is nothing dangerous. Then he completely takes my breath away, and tells me with the rash getting as bad as it is, that we do not need to complete the 6th neo-adjuvant chemo! Wait, what? I’m done with the neo-adjuvant chemo? I don’t have to go through this Hell again? I don’t have to go through the emotional and mental torture for the next week of preparing myself for the pain, for being sick, mouth sores, headaches, rashes, vision changes, and GI issues? But, wait, I do not want to “half ass” this fight. I want to be hit with all of the hard stuff, give me everything, all of it, no matter how hard, so that this will be gone and I can move on with my life. Dr. Mayer talked us through the clinical trails for the chemo I am on, and in fact, most made it through 5 rounds of the chemo, so I was doing pretty good. But, with as bad as the rash is getting, and the compounding side effects of the chemo on my body continuing to get worse, it was time to stop the neo-adjuvant chemo!!! I couldn’t breath right at this point. I DID IT! I made it through this Hell of neo-adjuvant chemo! 5 rounds! I pushed myself, I picked myself up each and everyday, I cheered myself on, and I didn’t give up no matter how hard! I am so damn proud of myself!! I am stronger than I could have ever imagined I could be!! We finish up my appointment, and start to head to the car, and I can’t stop smiling, I jump into my husbands arms, I kiss him a thousand times, and then, I get into the seat next to my husband, and I just cry. I’m crying because I am so happy to be done with this . I’m so proud of everything I have accomplished , and I’m excited to move on to the next step! My husband holds me and tells me how proud he is of the woman I am, how tough I am, how beautiful I am, then kisses me the way he does that fills me to the top with strength, confidence, love, encouragement, and bravery. Then we head downtown to meet with My plastic surgeon. My mastectomy is scheduled for May 18th @ St. Joes. Our appointment is to discuss final details. But first, I want to touch on second opinions. A while back, we met with a plastic surgeon who was very nice, but what he wanted us to do for my surgery was not something I wanted, nor did I feel comfortable with. I thought about my consult with this doctor for several weeks and was unable, no matter how hard I tried, to accept orbe comfortable with his surgical plan for me. So, I did something I’ve never done before, and decided to get a second opinion. I’ve always been someone who is almost “too trusting”, I mean, he’s a doctor, he knows what he’s doing, I need to just trust him, right? Well, in most cases yes, I do just that, but my gut feeling was a little overwhelming on this one. It wasn’t a quiet whisper that I could just tune out, it was the equivalent of a 3 yr old little boy scream. For you momma’s out there, you know it’s close to impossible to ignore a sound like that! Long story short, I made the call, saw another plastics doctor, and I am so glad I did! He is completely on board with what we were hoping for, and we felt so comfortable and connected to him. I no longer am afraid for my upcoming surgery as we fully trust our surgeons. May 18th, I will have my mastectomy, and have expanders placed at the same time. Our appointment was to discuss size and shape of the implants I will eventually have. Because I have to have radiation, I will have my expanders for a little over a year. Let me tell you just how weird it’s been for me to research what breasts I would like to have. We were sent home with “homework” to look up pictures of breasts to find the shape and size that I like. I’d wait until the kids were in bed then sit in the corner of my couch where if the kids came up the stairs they couldn’t see the pictures of boobs on my computer. I would type ” breast implants” or “reconstruction after breast cancer” or “boob job pictures” and many other things to bring up as many pictures of breasts as I could find to look at. After a few hours of sorting through different pictures I saved the ones, or should I say “pairs” that I liked the best. At this point, I took a BIG deep breath, and text my husband something to the effect of “I’m going to send you some pictures of boobs I like. Can you please look at them and tell me which you like the best? And then could you please delete them from your phone, never ever think about them again, and promise me you will love my boobs the best no matter the scars?” I know, ridiculous right? But, I don’t think any of you quiet understand what its like to try to make a decision on breast size, and shape, while you worry about the scars, the pain, and the simple fact that what you would really like is to just keep the breasts you have. But, I can’t do that, because the breasts I have are currently very mean and trying to kill me. You’ll be glad to know that I picked the size and shape I would like, and we are ready for surgery. One other fun fact, we also discussed my nipple options. This is something I don’t really have to completely decide right now, but I did have to decide if I wanted my surgeons to save my right nipple or not. My breast cancer is in my left breast and my surgeon is unable to “save” my left nipple. So, I needed to decide if I wanted my right nipple to be “saved” or if I would like it removed for the symmetry. I decided not to save my right nipple, and that when construction is complete I will have 3d tattooed nipples. I know, I know, sounds crazy. But. Google it. It’s actually really great. I’ve come a long way in my feelings on this upcoming surgery, and I’ve decided its kind of fun to pick out what size and shape, and what kind of nipples, and well, it’s kind of like picking out your perfect car. I get to pick out and design my own boobs! And I’ll tell you this, at the end of all of this, I’ll have the boobs I want!

