Alright, there are so many taboo topics out there, that we all just don’t talk about. Whether its sex, death, money, diarrhea, or religion. I’ve got nothing to hide, and I’ve made myself pretty vulnerable to you all in this little journey of mine, so why stop now? As I get through each day, I try to think about what I can share with all of you, what you may or may not know about what I am going through. So, let’s talk about SEX. We attended our “chemo class” at the start of this. One thing the nurse told us was that a lot of couples really struggle in their sex lives not only during chemo, but this entire fight. Each step brings new struggles, but they’re all hard in their own ways. But no matter what comes with each, it’s all more than worth it. First of all, how many of you know that for the first at least 72 hours after chemo, all of my bodily fluids are toxic? Come on, don’t lie, we can’t be the only ones who had no idea. I have to use a different bathroom than everyone, we need to wash our pillows and sheets, I need to wash my make up brushes, I’m not suppose to kiss the boys, or swap spit with my sexy husband (REAL challenge for me) and obviously not have sex. In fact, our nurse informed us if we so chose to have sex within that time, we would need to make sure to use “barriers” as the chemo could really hurt my husband. First thing I did when she told us that was laugh, thinking “man I feel bad for the guy who found that out”. Then, you get pass that initial 72 hours, and that’s the exact time I start getting really sick. All of my favorite side effects start and usually a few new ones. I typically really do not feel well for about the next 8 days. Between being miserably sick, pain, and sheer exhaustion, there is surely nothing happening in the bedroom. I’m happy if at this point I can just get a few hours of sleep. After quiet some time, I slowly start feeling better! At this point, my pain is subsiding, my rashes are somewhat healing, I’m not pooping my ever loving brains out (which just makes anyone feel sexy) my nausea is less frequent, and my mouth sores are healing (do you know how hard it is to kiss your husband when your mouth is covered in sores?) There are some things though that are always somewhat difficult. No matter what point I am at in treatment, my nose is constantly running. Why? Well, along with all of the other hair on my body, I’ve also lost my nose hairs. Not really a big deal right? It’s really not, but, it is somewhat annoying, embarrassing, and not sexy when you’re kissing your husband and your nose is constantly running. Alright, you come to terms with the fact that your nose is constantly running, and you figure out that if you blow your nose, and then head towards your super sexy husband to get yourself a nice squishy kiss, right before you kiss him, sniff your nose really hard, and you can typically get an un-snot interrupted 3-5 second kiss. No big deal. But, lets not push our limits and try for any make out session of any sort as it will end up wet and salty. Haha. Body image is next. Every woman with or without cancer struggles with this on a daily basis. And if you don’t, I admire you. On top of any regular insecurity you may have had, add some additional weight that you have had the pleasure of gaining from all of the steroids, chemo, and hormone treatment you’re on. You develop a pretty nice fluff. I know what you’re all thinking as you read this, she’s worried about the extra weight she’s gaining from chemo? At least she’s alive. And you’re right. In the big picture, there are a lot more important things, but it doesn’t make it easy, and it doesn’t take away the insecurities, or make it any less real. I still feel these things, I just choose to grow through them, to push myself, and to find confidence in myself that I’ve never had. In addition to your extra fluff, you get to be bald. I know, I know, I should well past this. For the most part I am. But, I can’t find the right words to explain how uncomfortable as a woman it is to want to be “sexy” to your husband, but how out of place and weird you feel when you’re laying in your bed next to him, and you’re bald. My husband has not changed the way he looks at me in the slightest, he thinks I am even more beautiful now, I can feel his love for me in the way he looks at me, or looks into my eyes. This is a personal struggle. A struggle to feel sexy, and to feel like a woman while I have no hair. The amazing thing is, that when I get through all of this, I will have a true unbreakable confidence in myself. Each day I fall more into my own body, my heart, my soul, my very being. You have to really fall in love with yourself, and get to know the you you’ve never known. But what an amazing gift. At the end of this, I will have fallen in love with every inch of me, I will have pushed through every insecurity, every fear, and become a truer, stronger, confident, unshakable me that I never knew could exist. On the other side of this is my husband. I’ve learned a lot recently, how much my diagnosis effects many more people than me. I’ll expand on this in another post, but for tonight, I want to talk about my husband. No, he does not have cancer, and he’s not going through chemo, but he is very much going through this too. I could not imagine how hard it would be for me to see him go through this and feel so helpless. I’m sure he feels helpless, frustrated, hurt, and stressed to say the least. He also has a lot that falls on his plate. By the time I get home, I am beyond exhausted, and I don’t have much energy as it took everything to get through the day. So, who do you think dinner, the kids, the house, and the dogs fall on? Yep, that amazing husband of mine. He’s happy to do all of it, but that doesn’t make it easy. He does all of those things, and takes care of me, all with that beautiful smile on his face that never fades. In addition to the emotional side, and all of the stress he takes on, let’s think about how much he worries about me. Let’s get back to our timeline, 72 hours I’m toxic, next 10 days or so, I’m sick and miserable, I start to feel better, but I’m insecure, and then my husband is stressed, and very worried about me. Well, before you know it you wake up and its time to get chemo again, and this whole thing starts over. So, let’s talk about sex, and how hard it is to keep alive while you’re going through this. But here’s the thing, you figure it out, you have to. But not only do you figure that out, you find a lot of other ways to be intimate. We may not have a crazy, wild, hair pulling (yeah I just went there)sex life while I am going through this, but we have found intimacy in different ways. We are very quickly becoming very good communicators, he is constantly holding my hand, getting lost in my eyes, divulging secrets, insecurities, emotions, and his truest heart, kissing me in the sweetest ways, connecting on levels we didn’t know existed, and growing the most amazing trusting friendship. He has the ability to take away any pain or worry with his touch. That’s the honest truth. When I am really sick, or in pain, or sad, the one thing I can consistently count on to ease me or take it away is a simple touch from my husband. I can fall into his arms and be at peace. I don’t know about you, but that’s something truly amazing.
Phew. I did it. I wrote about something pretty taboo, but also pretty scary to be so vulnerable and open about. I promised myself to push ,y limits, to be vulnerable, and to share the most honest experiences I can through this. So, here I am, being brave and talking taboo.
Going into the 5th round of chemo, we pre planned 2 separate IV fluid appointments in hopes that maybe we could prevent me from being so miserable. My oncologist also wanted to keep an eye on the rash that I keep developing about 5 days after chemo. Right on schedule, the evening of the 5th day following chemo, I kept waking up with my arms feeling like a had a very bad sunburn, and the next morning, the rash was covering my right arm. My appointment for fluids on Monday also consisted of my oncologist being very confused by the rash, and giving me IV steroids as well as 4 days of oral steroids. Not only did this not help, my arms kept getting worse, much worse than the previous round. Off to the dermatologist I went. He was unsure what exactly the rash was, but thought he would give me 2 weeks of a higher dose of steroids. For those of you who are not aware, steroids are not enjoyable. You’re cranky, hungry, puffy, and its impossible to sleep. But, if it’s going to make me better, its worth it. My rash is getting WORSE. The best way I can explain the pain is for you to imagine what it would feel like to have someone hold a torch to your arms. As miserable as it is, I keep going through each day thinking as positive as I can. If the chemo is destroying my arms the way it is, imagine what it is doing to the cancer in my body! Now, it’s time for my appointment with my oncologist prior to my next chemo. This time our appointment is a week before my 6th chemo instead of the same day. We’re sitting in the exam room like usual, Dr. Mayer walks in laughing (as he has done time and time again, because what else can we do other than laugh at all of the things that are constantly thrown my way?) he sits down and tells me I need to go to the dermatologist today, and get a skin biopsy. He is unsure what is causing my rash, and we need to be sure it is nothing dangerous. Then he completely takes my breath away, and tells me with the rash getting as bad as it is, that we do not need to complete the 6th neo-adjuvant chemo! Wait, what? I’m done with the neo-adjuvant chemo? I don’t have to go through this Hell again? I don’t have to go through the emotional and mental torture for the next week of preparing myself for the pain, for being sick, mouth sores, headaches, rashes, vision changes, and GI issues? But, wait, I do not want to “half ass” this fight. I want to be hit with all of the hard stuff, give me everything, all of it, no matter how hard, so that this will be gone and I can move on with my life. Dr. Mayer talked us through the clinical trails for the chemo I am on, and in fact, most made it through 5 rounds of the chemo, so I was doing pretty good. But, with as bad as the rash is getting, and the compounding side effects of the chemo on my body continuing to get worse, it was time to stop the neo-adjuvant chemo!!! I couldn’t breath right at this point. I DID IT! I made it through this Hell of neo-adjuvant chemo! 5 rounds! I pushed myself, I picked myself up each and everyday, I cheered myself on, and I didn’t give up no matter how hard! I am so damn proud of myself!! I am stronger than I could have ever imagined I could be!! We finish up my appointment, and start to head to the car, and I can’t stop smiling, I jump into my husbands arms, I kiss him a thousand times, and then, I get into the seat next to my husband, and I just cry. I’m crying because I am so happy to be done with this . I’m so proud of everything I have accomplished , and I’m excited to move on to the next step! My husband holds me and tells me how proud he is of the woman I am, how tough I am, how beautiful I am, then kisses me the way he does that fills me to the top with strength, confidence, love, encouragement, and bravery. Then we head downtown to meet with My plastic surgeon. My mastectomy is scheduled for May 18th @ St. Joes. Our appointment is to discuss final details. But first, I want to touch on second opinions. A while back, we met with a plastic surgeon who was very nice, but what he wanted us to do for my surgery was not something I wanted, nor did I feel comfortable with. I thought about my consult with this doctor for several weeks and was unable, no matter how hard I tried, to accept orbe comfortable with his surgical plan for me. So, I did something I’ve never done before, and decided to get a second opinion. I’ve always been someone who is almost “too trusting”, I mean, he’s a doctor, he knows what he’s doing, I need to just trust him, right? Well, in most cases yes, I do just that, but my gut feeling was a little overwhelming on this one. It wasn’t a quiet whisper that I could just tune out, it was the equivalent of a 3 yr old little boy scream. For you momma’s out there, you know it’s close to impossible to ignore a sound like that! Long story short, I made the call, saw another plastics doctor, and I am so glad I did! He is completely on board with what we were hoping for, and we felt so comfortable and connected to him. I no longer am afraid for my upcoming surgery as we fully trust our surgeons. May 18th, I will have my mastectomy, and have expanders placed at the same time. Our appointment was to discuss size and shape of the implants I will eventually have. Because I have to have radiation, I will have my expanders for a little over a year. Let me tell you just how weird it’s been for me to research what breasts I would like to have. We were sent home with “homework” to look up pictures of breasts to find the shape and size that I like. I’d wait until the kids were in bed then sit in the corner of my couch where if the kids came up the stairs they couldn’t see the pictures of boobs on my computer. I would type ” breast implants” or “reconstruction after breast cancer” or “boob job pictures” and many other things to bring up as many pictures of breasts as I could find to look at. After a few hours of sorting through different pictures I saved the ones, or should I say “pairs” that I liked the best. At this point, I took a BIG deep breath, and text my husband something to the effect of “I’m going to send you some pictures of boobs I like. Can you please look at them and tell me which you like the best? And then could you please delete them from your phone, never ever think about them again, and promise me you will love my boobs the best no matter the scars?” I know, ridiculous right? But, I don’t think any of you quiet understand what its like to try to make a decision on breast size, and shape, while you worry about the scars, the pain, and the simple fact that what you would really like is to just keep the breasts you have. But, I can’t do that, because the breasts I have are currently very mean and trying to kill me. You’ll be glad to know that I picked the size and shape I would like, and we are ready for surgery. One other fun fact, we also discussed my nipple options. This is something I don’t really have to completely decide right now, but I did have to decide if I wanted my surgeons to save my right nipple or not. My breast cancer is in my left breast and my surgeon is unable to “save” my left nipple. So, I needed to decide if I wanted my right nipple to be “saved” or if I would like it removed for the symmetry. I decided not to save my right nipple, and that when construction is complete I will have 3d tattooed nipples. I know, I know, sounds crazy. But. Google it. It’s actually really great. I’ve come a long way in my feelings on this upcoming surgery, and I’ve decided its kind of fun to pick out what size and shape, and what kind of nipples, and well, it’s kind of like picking out your perfect car. I get to pick out and design my own boobs! And I’ll tell you this, at the end of all of this, I’ll have the boobs I want!











